Great news! My Gastro doc says after my prednisone taper I am DONE with the ‘roids. Finally!
I had my Remicade infusion and saw my doc on Friday. I definitely wasn’t looking forward to my infusion b/c I was worried I was going to get stuck with a needle like 5+ times. Because I have been stuck so many times in the past two years my veins now harden and roll or they conveniently “magically” disappear when they know the needle is near. It’s absolutely amazing what the subconscious-self can do. I mean, mentally I don't think it’s a big deal, but apparently my subconscious-self does. The damn thing has a mind of it’s own and as a result, my veins disappear. It’s freakin’ amazing. Take Thursday for example. I was looking at the veins in my arms and saw a few good potentials. Conveniently enough, as I was sitting in the comfy La-Z-Boy Recliner in the Ambulatory Infusion Center Friday morning, they were nowhere to be seen. Interesting.
Anyway, the nurse successfully poked a vein in my hand on the first try and the rest is history! Thank goodness! My Remicade aka Mouse Juice aka Jerry Juice (as Clarice calls it) was doubled this time around, so hopefully my body will stay in remission once off the 'roids. So, if I look extra Jerry-ish it’s b/c I have double the mouse antibodies flowing through my veins. And no, I’m not joking! I’m a little fatigued and my body is a little out of whack right now, but I think its b/c the medicine is doing its thing. Cleaning out the bad and healing the wounds.
After my infusion I saw my Gastro Doc. As I ever so excitedly announced above, after I taper down from the ‘roids this time I am done with the prednisone. He is concerned for my bones as well as my eyes. I guess if you’ve been on prednisone for quite a while it can start affecting your eyes. I’m just glad that instead of me making my own decision to be off the ‘roids (we all know how that went), my Doc put his foot down and said no more. It’s a relief. Trust me. So, this news is, as Borat would say, “Great Success!”
If for some reason I do start flaring again, my meds are getting switched and I’m getting another colonoscopy b/c he wants to check my mucosa and just reaffirm that there isn’t anything shady going on in there. My doc spoke about possibly putting me on Humira or Methotrexate. He also said he would write me a referral to the Mayo Clinic in Minnesota. So, like anything else with this beast, we’ll just wait and see what my body decides to do. Of course I want more than anything to stay in remission.
I flew back to AZ early this morning (THANX DAVID FOR TAKING ME TO THE AIRPORT AT 0430)! Actually I want to give much love to David, my super awesome neighbor, who put up with my crazy paranoia and silly self. I also want to thank Barb, who is not only one of my best friends, but my pseudo mama! You guys are great! I was only in VA for a few days, but the days were great and well spent. Yes, even my long day at the hospital on Friday wasn't that bad because things got accomplished and a lot of questions were answered.
I’m not planning on going back to VA until mid September for my next treatment cycle, so I’m going to be livin’ it up in AZ, and doing a lot of riding. Until next time my friends!